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#437 - 🔵 [PAS 2026] - How Do We Counsel Families of Tiny Babies Without Crushing Hope or Delivering False Hope? (ft. Dr. Charles Roehr)
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#437 - 🔵 [PAS 2026] - How Do We Counsel Families of Tiny Babies Without Crushing Hope or Delivering False Hope? (ft. Dr. Charles Roehr)
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Dr. Charles Roehr, neonatologist from Bristol, UK and faculty member of the Tiny Baby Collaborative, makes the case that caring for extremely preterm infants is as much about engaging families as it is about mastering the medicine. He discusses why parents of tiny babies are among the most vulnerable to enter a research conversation — often facing precipitous deliveries with little to no preparation — and what it takes for clinical teams to meet them where they are. He also addresses one of the hardest conversations in neonatology: how to counsel families around survival and neurodevelopmental outcomes when center-to-center variability is so wide, and why translating evidence from one unit to another remains one of the field's most stubborn unsolved problems.
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As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below.
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