What is it like to be diagnosed with polycystic kidney disease (PKD) at just 10 years old—and to know it runs through your family?

In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Natasja about her lived experience of PKD, a hereditary kidney condition that has affected multiple generations of her family.

From her great-grandmother to her mother and beyond, kidney disease is not just part of Natasja’s story, it’s part of her family history.

In this honest and deeply personal conversation, Natasja shares what it’s like growing up with chronic kidney disease (CKD), navigating the emotional and physical realities of a lifelong condition, and facing serious complications along the way.

In this episode, we cover:

• What polycystic kidney disease (PKD) is

• Being diagnosed with kidney disease at a young age

• The impact of hereditary kidney disease across generations

• Living with chronic kidney disease (CKD)

• Navigating serious health complications

• Finding strength through lived experience

⚠️ Content note: This episode includes discussion of serious complications related to kidney disease that some listeners may find difficult.

This episode is a powerful reminder that behind every diagnosis is a real story, one of resilience, strength, and lived experience.

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Disclaimer:

The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

#PKD #PolycysticKidneyDisease #CKD #KidneyDisease #KidneyWarrior #ChronicIllness #HealthPodcast #PatientStory #KidneyHealth #HereditaryDisease #DiaryofaKidneyWarriorPodcast

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Hi Kidney Warriors and friends, Dee Moore here!

I wanted to share a personal update with you.

Alongside the recent podcast episodes on weight and GLP-1, I’ve also shared a vlog on YouTube where I talk more openly about my own experience and how this connects to my kidney transplant journey.

📺 The vlog is available to watch on YouTube:

https://youtu.be/RAa5ipo8b6k

If you’re not already connected, you can also:

Follow Diary of a Kidney Warrior:

📸Instagram: www.instagram.com/diaryofakidneywarrior

📘Facebook: www.facebook.com/diaryofakidneywarrior

🐦Twitter (X): www.twitter.com/diaryofakidneyw

🎵Tik Tok: @diaryofakidneywarrior

📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

🔵 BlueSky: @diaryofakidneyw.bsky.social

💌 Join the (free) Diary of a Kidney Warrior Family Mailing List

Get updates on new episodes, vlogs, newsletters, and more!

👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47

📲 Follow Diary of a Kidney Warrior on WhatsApp (free)

Stay updated with new episodes and exclusive content!

👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r

If you found this helpful, you can also watch/ listen to the recent episodes on weight, dialysis, transplant eligibility and GLP-1.

Episode 155: GLP-1 Medications, Weight Loss & Kidney Transplant Eligibility | Beyond The Scale (Part 2)

https://kidneycareuk.org/get-support/podcast/beyond-the-scale-glp-1-medications-weight-loss-and-kidney-transplant-eligibility/

Episode 154: Weight, Dialysis & Kidney Transplant Eligibility | Beyond The Scale (Part 1):

https://kidneycareuk.org/get-support/podcast/beyond-the-scale-weight-dialysis-and-kidney-transplant-eligibility-part-1/

⚠️ Disclaimer:

This vlog is a personal update and is not part of the Diary of a Kidney Warrior Podcast partnership content.

This content is shared for awareness and educational purposes only and is not medical advice. Please speak to your healthcare team for guidance specific to you.

Until next time, take care and choose to live.

#diaryofakidneywarriorpodcast #kidneydisease #ckd #kidneytransplant #dialysis #glp1 #weightlossjourney #patientstory #kidneyhealth

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