Producer Dee Daniels hosts a one-on-one Grace, Grief and Grit podcast episode with Anne Davis reflecting on grief nearly five years after the passing of her daughter Hallie Grace, who was born in 2021 and would turn five on June 5, 2026.

Anne describes how time feels distorted in grief and challenges the idea that “time heals all wounds,” explaining that life grows around grief but the absence can feel sharper as new milestones arise, especially while parenting her living children, Brielle and Evan.

She shares coping tools from therapy, including “starfishing” in quicksand rather than fighting emotions, and discusses navigating new grief as a loved one nears death. Anne and Dee explore isolation across multiple “grief clubs,” society’s discomfort with child loss, and how Hallie’s nonprofit supports EB families through initiatives like memorial boxes, welcome boxes, Wings of Care, and the annual ball.

IMPORTANT LINKS:

Butterfly Warrior: The Story of Hallie Grace Documentary || Watch Now

A Beautiful Soul Who Left an Impact

Learn more about ways you can help and join the fight

Grab your TICKETS here for the 5th Annual Hallie Grace Memorial Butterfly Ball

FIND A FAVORITE SPOT IN THIS EPISODE:

00:00 Welcome and Setup

00:42 Hallie Turning Five

05:00 Time and Grief Myth

07:38 Missing Piece Moments

10:25 Shadow Figures Visual

13:19 Holding Two Truths

15:28 New Grief Wave

19:08 Starfish the Quicksand

22:33 Many Grief Clubs

23:52 Isolation in EB Loss

28:03 Grief Feels Different

28:20 Why People Pull Away

31:09 Carrying Others Comfort

31:47 Networking Reactions Sting

33:48 Friends Leave and Shift

35:12 Fundraising Feels Rejected

37:37 Keeping Hallie Present

38:52 Legacy After Loss

43:18 Ways to Lean In

47:08 The Ball Brings Joy

48:45 Hallie Welcomes Families

50:27 Hopeful Fifth Year

51:38 Memorial Boxes Impact

54:36 Final Call to Support