Lewy Body Roller Coaster Podcast By Linda and Curry cover art

Lewy Body Roller Coaster

Lewy Body Roller Coaster

By: Linda and Curry
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Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com© 2026 Lewy Body Roller Coaster Hygiene & Healthy Living Physical Illness & Disease
Episodes
  • A Doctor's Thoughts on LBD- We asked Him Many Burning Questions
    Mar 4 2026

    This week, welcome Dr. Jason Cohen.
    Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so if anyone has other questions to ask, please email them to us at lewybodyrollercoaster@gmail.com

    Hearing his responses made us feel hope and he said everyone needs to share about their LBD experiences because the more we all share, tjhe more people will know what the disease is.

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

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    46 mins
  • The Power of Online Support Groups
    Feb 25 2026

    This week we welcome six individuals who attend at least one of our support group zoom meetings. We wanted them to share with you all the power of attending a support group. Our hope is you hear from these amazing people and feel more comfortable joining in one of the meetings we hold each wee
    Naomi from Ireland mentions Lewy Love. That's what you will get when you attend one of our support meetings- people who get what you are going through and understand and never, ever judge. Enjoy meeting these individuals who are members of our Lewy Family.
    I, for one, am thankful for each of them and their friendships. and k now Curry feels the same way.

    A shout out to our new and some past Patreon and Go Fund Me Supporters

    Toby Gorelick and Deb and Paul Lannom and Laura Michel, Pia Benard, Marcia Treffman
    We couldn't do this podcast without all of you who support us!

    Should you wish to bless us with your support you can :

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

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    1 hr and 3 mins
  • Facing the Wind
    Feb 18 2026

    We are back after a much needed break to handle many personal issues. Thank you all for your continued patience. Just as LBD is a roller coaster ride, so has been our lives been the last few months.

    A big shout out to all of our supporters. We couldn't do all this without your help and support. xo

    This episode, we do a quick recap of how this all got started..the podcast, our 5 support groups, 2 Facebook support pages and now a LBD awareness documentary.

    We share with you all what we have been involved in over the past year or so that many of you may not be aware of. We have been working with a film crew on a documentary about those with LBD and their caregivers. Since that the film is close to completion, we thought now is the perfect time to share more details with y'all.

    Welcome this week, the producer and director of the documentary we have been working on titled Facing the Wind. -Tony Heriza and Diedre Fishel.
    The four of us share more details about the film and what it was like to be a part of this project.

    Please consider watching the documentary trailer ( link below) and clink on the donate button to help get the film completion over the finish line. No amount is too small.
    Go to: Facingthewindfilm.com or click on link below.

    https://facingthewindfilm.com/

    We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

    Show more Show less
    52 mins
All stars
Most relevant
I am so excited at the prospect of having the film "Facing the Wind" come out soon. My husband has had LBD for a few years and I believe that education and community support is key to understanding, getting treatment, and coping with Lewy Body Dementia. I have listened and re-listened to the podcast Lewy Body Dementia Roller Coaster since about month 2. Curry and Linda have created a life changer for me and I believe for anyone who will listen. I wd rate it much higher if that was possible.

Real people are giving real hope.

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I love that people are allowed to tell their Lewy Love stories. The journey is so different for each one.

Real stories - unscripted!

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