Today we’re interviewing Eddie and Suzie, who are raising awareness of PAF (Pure Autonomic Failure), a rare condition that only around 180 people in the UK live with.

In this episode we discuss…

- What it’s like to live with a rare condition

- Setting up their own support group and the importance of a supportive network

- Going from caregiving to being cared for

- Travel insurance when you have a rare condition

- How the National Disability Card helps on days out and at theatres

- How the National Carers Card helps carers get recognition and assistance

💜 Join Suzie & Ed's PAF Support Group: https://www.facebook.com/groups/869025589357423

💙 Apply for the National Disability Card: disabilityid.co.uk

❤️ Apply for the National Carers Card: nationalcarerscard.org.uk

Cici became a carer for her dad in her teens, and is now working to support other young carers. In this episode, we discuss...

- Cici’s journey to becoming a young carer after her dad’s rare dementia diagnosis

- The hidden challenges of identity, guilt, and growing up while caring at home

- Why recognising yourself as a carer can change everything - including access to support

- The lasting impact of caregiving on boundaries, relationships, and mental health

- How to support other young carers.

Learn more about Cici’s work: www.seeingdementiadifferently.com

Apply for the National Disability Card: disabilityid.co.uk

Apply for the National Carers Card: nationalcarerscard.org.uk

Holly Fleet, who you might know as @stomababe, is an online creator who has built a following around sharing her experiences of living with ulcerative colitis. In this episode we discuss…

- Why a stoma bag isn’t the worst case scenario

- What most people don’t understand about hidden disability

- Finding community when you have disabilities

- How to let your employer know you're disabled

- How Holly uses her National Disability Card

💙 Apply for the National Disability Card: disabilityid.co.uk ❤️

Apply for the National Carers Card: nationalcarerscard.org.uk

💖 Follow Holly on YouTube, Instagram & Tiktok: @stomababe