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Rare Care Podcast

Rare Care Podcast

By: Rare Care Podcast
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved Hygiene & Healthy Living Science
Episodes
  • 220: An Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular Disease
    Apr 13 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jaime Moore, MD, about weight loss drugs—specifically the role of GLP-1 receptor agonists in treating children with neuromuscular diseases and obesity.

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    14 mins
  • 219: An Interview With Dr. Natalie Truba on the Psychological Aspects of Gene Therapy
    Apr 7 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric psychologist Natalie Truba, PhD, on the psychological aspects of gene therapy in neuromuscular disease.

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    15 mins
  • 218: An Interview With Donna Shipp on Her IgG4-RD Patient Journey
    Mar 31 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donna Shipp, a Boston-area nurse who was misdiagnosed with cancer, underwent surgery and later realized she had IgG4-RD. She now advocates on behalf of others with this rare disease.

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    14 mins
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